To provide a co ordinate specialist holistic approach to the person with Marfan syndrome who may be at risk of or is experiencing cardiac complications.
- Established in 2004
- Collaborative clinic between the cardiology and cardiothoracic service
- Referrals are received from national cardiology and cardiothoracic services
- 3 clinics are held per annum
- Clinic visit entails consultation with a cardiologist and a cardiothoracic surgeon, an echo and/or a cardiac / spinal MRI scan which is reviewed on completion.
- The clinic philosophy encompasses a holistic approach, which entails persons being referred to the appropriate specialities if at risk of or experiencing complications i.e opthalmics , genetics and orthopaedics
- Advice is provided in relation to lifestyle issues. Persons are educated in the potential complications and advancement of Marfan syndrome, diagnostic and therapeutic modalities. This empowers the person to make informed choices regarding their care
- Research is presently being undertaken into the genetic origin of Marfan Syndrome
This Specialist Out-Patient public clinic for patients with Marfan Syndrome, is in the Mater Misericordiae University Hospital, Dublin.
Prof. J. Mark Redmond, Consultant Cardiothoracic Surgeon and Dr. Kevin Walsh, Consultant Cardiologist jointly attend this clinic. A separate consultation occurs with Rhona Savage, Clinical Nurse Specialist in Congenital Heart Disease. The Nurse Specialist provides information in relation to Marfan Syndrome and how this affects each patient.
To access this service, a referral letter should be sent from your present Cardiologist or G.P. to the following address: Prof. J. Mark Redmond, Consultant Cardiothoracic Surgeon, Mater Misericordiae University Hospital, Eccles Street, Dublin 7.
These letters will be reviewed by the consultant who prioritises the request. The consultants' secretary then informs the patient in writing of the appointment. For more information please contact: Secretary to Prof. J. Mark Redmond on (01) 803 2270 or Rhona Savage, Congenital Heart CNS on (01) 803 4701.